killing_rose: Raven on an eagle (Default)
[personal profile] killing_rose
Since as many of you are aware, my body is COLLECTING MORE GODDAMN GENETIC MUTATIONS, I come a begging.


So my eyes are...doing things that fall into the category of "this is absolutely a medical urgency thing" and I'm handling the medical side.

What I am not handling is "how do I handle my very, very online world"--my work is 10.5 hours a day on two screens, my capstone project, currently being worked on, is multiple screens of data, and literally everything is so blurry I cannot proof my typos without blowing up the text. A lot.

So. Pease gods, speak to me of your visual hacks--audio reading plug ins or text to speech or ways to check code in R for typos or what the best high contrast font/colors are. Or what types of lightbulbs and lamps to buy for my new apartment to have the most amount of light with the least amount of glare.

(We won't have overhead lights in my bedroom or the living room since they don't exist in those two rooms; there are in the two bathrooms, kitchen, and hallway. I think there is in my roommate's room, but it doesn't super matter there. Through the magic of the Internet, Ikea, and Amazon, I can probably purchase most suggestions within next week or so.)
Any other tips are also welcome.

I'd like to say I'm fine with what's going on, because I've been dealing with my body throwing me genetic curveballs since I was 17...

I am not fine. I will take any tips and tricks y'all have got. (Esp because I'm moving in 10 days. Half the time I go to bend my head and the pressure increases. Needless to say, I've had to ask friends for packing help, ,and that's not something I'm coping well with either.) At least on that front we're about 75% packed and worst comes to worst, I go buy 6 more ikea bags and we haul everything remaining to be packed in ikea bags.

(I am only partially joking.)

Anyway. I'm not sleeping because of the visual issues causing me to be fourteen types of EXTREMELY tense, which I'm certain they're going to lecture me about in about 45 minutes (heading out the door now, hopefully will have further details of what's going on and steps to take soon), so I will take any suggestions for improving my life through technology, text to speech or other things I haven't thought of. (I would be less annoyed at myself, but these are resources I can usually point people towards for other disability reasons. I am currently more scattered than I'd like to admit.)

Crossposted several places if you see this popping up in DW spaces.
alexseanchai: Katsuki Yuuri wearing a blue jacket and his glasses and holding a poodle, in front of the asexual pride flag with a rainbow heart inset. (Default)
[personal profile] alexseanchai
I will have ever so much more energy if I eat.

Before I eat, I need to do dishes.

I do not have enough energy to do dishes.

ETA 4h later:

Don't eat, get lightheaded.

Do eat, get upset stomach.
numberland: Two cats on manual wheelchair, looking up a the camera (Default)
[personal profile] numberland
So, over the weekend I had a constant migraine for about 72 hours, not responding as well as normal to medication which is unpleasant but nothing to write home about. Something that was massively, massively more distressing was that I had sudden and very severe paralysis thoughout most of my body. It was freaking weird, I sometimes can't move because of exhaustion this was totally different - I had energy, wanted to more, sent the singles and *nothing* happened. I could still breathe and was getting random muscle twitches but nothing under control. Phoned emergency services who were initially very worried about a stroke. A bit of googling after movement came back strongly suggests I have Hemiplegic migraines. Hooray for another condition that is missunderstood and which I have an apparently non-typical version of (I had both sides though one side worse - medical sites talk about one sided paralysis where the internet is full of people getting two sided paralysis from migraines in just the same ways). I'm going to get a referral to a migraine clinic but currently I am just *scared* - it doesn't help that migraine prevents often do not work well with my body :(

Sigh...

No.

Sep. 18th, 2012 11:04 am
kaberett: Grinning emoticon. (:D)
[personal profile] kaberett
You are not allowed to develop a dairy intolerance.

Knock that shit off now.

HURRAH

Jul. 21st, 2012 02:09 pm
kaberett: Grinning emoticon. (:D)
[personal profile] kaberett
And this week's prize!

Is a chest infection!

Plus a period!

Such that the coughing sets off the endometriosis in your surgery scars even worse!

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